One More Sleep.

Just one more sleep before Madame Stroppypants goes off on her holidays with her Mopsy and Popsy.

Just one more sleep before I get four days off being Mummy and get to be just Nicky.

Just one more sleep before my baby goes away and I miss her like CRAZY after about an hour!

I am exhausted. These past few weeks have really taken their toll and I’m mentally and physically done in. This summer has been the toughest yet with Lilly. She has had a recent growth spurt and seems so much heavier now. Doing all the lifting day in day out over these holidays has been really hard work.

It’s not just the physical aspect of caring for Lilly that I’ve found tough but trying to keep her entertained has been beyond challenging. I timed it and unless she’s plonked in front on the TV, she will go no more that 47 seconds before demanding my attention. The temptation to leave her googly eyed at Mr Tumble all afternoon has been VERY strong and admit to the odd hour here and there to regain some sanity!

You name it, we’ve played it. She’s bored of me now though and ready for school to start again. Even I’m bored of me! This weekend will be lovely for her and if the weather is good then she’ll be at the beach every day.

Sand + Lilly = Happy

As for me, I will doing the following: –

1 Sleeping
2 Cleaning
3 Drinking wine
4 Eating
5 Sleeping
6 Drinking wine
7 Drinking more wine
8 Sleeping
9 Eating

And finally…


I’ll see you all on the other side….

N x



A Funny Old Week…


Yesterday we took delivery of Lilly’s first ever wheelchair which was a bittersweet moment. Up till now she has had a special needs buggy (which I hated) but her core strength has improved so much that a wheelchair is now suitable for her needs.

She loves it. And I mean REALLY loves it. I showed her how to move it by pushing the wheels with her hands and Little Miss Tenacity has spent all of today practising and woe betide anyone who tried to help. She learnt how to move it within half an hour of me showing her but has stressed herself out. Her brain knows exactly what it wants to do but her little body won’t do as it’s told. I hate just having to sit back and watch her get upset and frustrated. She won’t accept any help, she is so fiercely independent. I feel helpless.

She is watching some dancing on TV at the moment and keeps telling me about it. We had a little ‘chair dance’ along with it but then she started pointing at her feet and then at the dancers and saying ‘no’. Is she starting to realise that she has a disability? That she can’t use her body like the dancers on TV? I have been dreading this day…..

I’ve had a lot going on this week and that combined with Lilly not sleeping well for the last few nights has left me feeling a bit delicate and woolly-headed. I feel the need to reboot, so this weekend I shall immerse myself in my family and have some early nights.

And maybe some wine…..

N x